Tamra Burns Loeb is an interim adjunct associate professor at the UCLA Center for Culture, Trauma, and Mental Health Disparities. AJ Adkins-Jackson is a research fellow at Massachusetts General Hospital. Arleen F. Brown is a professor of medicine at the University of California, Los Angeles. This story originally featured on The Conversation.
Racial and ethnic minority communities that lack internet access have been left behind in the race to get a COVID-19 vaccine. The average monthly cost of internet access, about $70, can be out of reach for those who can barely afford groceries.
Reporters and scholars have written about the effects of lack of internet access in rural areas in the US and developing countries, but they have paid less attention to the harm of lack of internet access in racial and ethnic minority communities in major cities.
We are researchers who study health disparities. We are concerned that even when vaccinations are offered in these communities, those at greatest risk for COVID-19 may be unable to obtain appointments without the help of family or friends. This includes racial and ethnic minority communities and older adults, the age group that is currently being vaccinated.
Our research suggests that lack of internet access may be an important reason. And for the almost 13.8 million older adults in the US who live alone, asking for help may not be an option.
The computer as a COVID-19 connector
During the pandemic, the internet has been an indispensable health tool to millions.
Telehealth services have provided a safe way for patients to make appointments for COVID-19 testing and other types of medical care. In fact, there was a 154 percent increase in telehealth visits during the last seven days of March 2020 compared to the same period in 2019. This was most likely due to public health mandates that required a shift away from in-person care.
In addition, patients receive communications from their providers through email and other messaging systems that offer access to health care, health information, and test results. And, departments of public health and the Centers for Disease Control and Prevention have relied on their websites, online events, and social media to educate the population about COVID-19. Access to the internet is essential during a pandemic.
This has been particularly true as the vaccine has been rolled out. Signing up for the vaccine has predominantly occurred online. This means that far fewer older adults from under-resourced racial and ethnic minority communities have been able to make appointments.
In 2018, more than one in four Medicare beneficiaries had no digital access at home. Those without digital access were more likely to be 85 years or older, members of racial or ethnic minority communities, and from low-income households.
How internet access can determine health
Over the years, medical and public health experts have identified social factors—structural racism, a person’s neighborhood, access to fresh food, exposure to toxins, income and education—that play a major role in health. These factors are often called the social determinants of health. Experts consider structural racism, or racism ingrained in social, business, educational and health policy and practice, to be one of the most damaging determinants. These factors in turn ultimately lead to more disease and death, as they have with COVID-19.
Early data on the case numbers and deaths from COVID-19 showed that structural racism likely increased exposure to the coronavirus among racial and ethnic minority communities. And, racial gaps also impeded access to testing and affected quality of care.
The pandemic has also illuminated the risk of infection to our aging population. However, research has placed less emphasis on how aging affects some populations more than others, such as the effects of structural racism and income.
Now, it appears that internet access is emerging as a new and troublesome determinant of health. This appears to be particularly true for under-resourced racial and ethnic minority communities and aging populations.
Although people can make appointments for a COVID-19 vaccine by telephone, call centers are frequently overwhelmed. Hold times can be extremely long. Access to the internet, having an internet-enabled device and understanding how to use both have been necessary to sign up for the vaccine. Many advocacy groups and public health experts have begun to see internet access as a fundamental civil rights issue.
During the fall of 2020, we looked at this issue in more depth with Black and Latino individuals who are HIV positive and at risk for a cardiovascular event. In our research, we found that 17 out of 30 patients had no internet, no computer, or lacked knowledge of how to use the internet or a computer. They, like many people with health issues or from under-resourced racial and ethnic minority communities, are affected by numerous social determinants that amplify the negative health consequences they experience.
While online health services could be used to increase access and retention in care among vulnerable groups, not having access widens existing disparities.
Solutions exist, but they must be implemented
To address the internet gap, we believe that policymakers must identify lack of internet access as a barrier and protect against its effects. This could include reserving vaccines in under-resourced racial and ethnic minority communities for local residents and designating senior hours for those 65 and older.
Policymakers could also mandate timely reporting of demographic information, even within medical settings, to monitor equity. Public health administrators could also partner with organizations that work with vulnerable populations, such as Meals on Wheels, to deliver food and vaccines to individual homes.
Departments of public health also could work with organizations and trusted community leaders to produce culturally consistent multimedia information on vaccinations and other health topics. They could also arrange for billboards, freeway signs and posters at local restaurants.
In addition, health care professionals and organizations can help by teaching patients about government subsidies and internet programs for low-income individuals from internet service providers. They can also provide training on how to use the internet, which would be at least a good beginning for these vulnerable groups.